This grant is designed to support research on the long-term health outcomes of people with spina bifida. It focuses on collecting and analyzing data from specialized clinics to improve care and management, particularly for children with myelomeningocele, a severe form of spina bifida. The grant aims to enhance understanding of health outcomes and refine treatment protocols.
Who it's for: This grant is for organizations and individuals involved in healthcare research, particularly those with access to spina bifida clinics that are part of the National Spina Bifida Patient Registry. It includes a wide range of eligible entities such as government bodies, educational institutions, nonprofits, and for-profit organizations.
More details
Likely Disqualifiers
- Lack of access to specialized spina bifida clinics
- Not participating in the National Spina Bifida Patient Registry
- Inability to collect high-quality longitudinal data
- Non-compliance with UMPIRE protocol requirements
- Ineligible entity type
What You May Need
- Access to specialized spina bifida clinics
- Ability to collect and analyze longitudinal data
- Participation in the National Spina Bifida Patient Registry
- Detailed project proposal
- Budget plan
- Proof of eligibility (e.g., nonprofit status)
- Past performance documentation
- Data management plan
- Evaluation plan for UMPIRE protocol
Cautions
- Ensure participation in the National Spina Bifida Patient Registry
- Strict adherence to data collection and protocol guidelines
- Potentially competitive due to limited number of awards
- Requires detailed data management and analysis capabilities
Generated from official source details for readability
Eligibility
Eligible Applicant Types
Additional Criteria
Eligible applicants include special district governments, other Native American tribal organizations, public and state institutions of higher education, nonprofits with or without 501(c)(3) status, individuals, county governments, state governments, city or township governments, independent school districts, private institutions of higher education, and for-profit organizations. This broad eligibility allows a wide range of entities to apply, provided they meet the specific requirements related to spina bifida research and data collection.
Overview
This grant is for organizations and individuals involved in healthcare research, particularly those with access to spina bifida clinics that are part of the National Spina Bifida Patient Registry. It includes a wide range of eligible entities such as government bodies, educational institutions, nonprofits, and for-profit organizations.
Likely Disqualifiers
- Lack of access to specialized spina bifida clinics
- Not participating in the National Spina Bifida Patient Registry
- Inability to collect high-quality longitudinal data
- Non-compliance with UMPIRE protocol requirements
- Ineligible entity type
Use of Funds
Funds can be used to collect and analyze data on spina bifida patients, implement and evaluate treatment protocols, and improve care management strategies. They support research activities, data analysis, and sharing of findings to enhance patient outcomes.
Total Program Funding
$3,000,000
Expected Awards
19
Cost Sharing
Not Required
Important Dates
- Posted
- Aug 26, 2026
- Deadline
- Oct 26, 2026(60 days)
- Archive Date
- Nov 25, 2026
- Est. Award Date (AI estimate)
- Early 2027
Application Checklist
- Verify eligibility as per entity type
- Ensure access to specialized spina bifida clinics
- Prepare a detailed project proposal
- Develop a comprehensive budget plan
- Gather proof of nonprofit status if applicable
- Compile past performance documentation
- Create a data management plan
- Plan for evaluation of UMPIRE protocol
- Submit application by the deadline